Home | Understanding and treating rare disease

Understanding and treating rare disease The information hub where you can find out about the rare diseases Alexion researches and treats.

UnifyRare is your resource for accessing information about the rare diseases Alexion studies and to learn how our pioneering treatments are building a better future for people with rare diseases

gMG

Generalised myasthenia gravis

NMOSD

Neuromyelitis optica spectrum disorder

aHUS

Atypical haemolytic uraemic syndrome

NF1

Neurofibromatosis type 1

HPP

Hypophosphatasia

CLINICAL CHARACTERISTICS

Learn more about the rare diseases we treat and how to recognise and best care for patients in your clinical practice

PRODUCT INFORMATION

Explore details about Alexion products available to treat rare diseases

EVENT REGISTRATION

Access and register for our educational webinars and symposia

RESOURCES

Find a library of resources available to support you and your patients with rare disease

Stay informed on new educational updates in your area of interest, our latest symposia, and to register for our webinars and other events.

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Electronic messaging: I agree and consent that Alexion can send via email or other electronic messaging, such as SMS or fax, information about rare diseases, about approved products and services of Alexion, invitations to webinars, information about scientific events and/or other scientific information by Alexion and its affiliates, based on your needs. Before consenting, please read our privacy notice.

Watch our video series highlighting the impact of living with a rare disease:

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Meet Lelainia Lloyd, a resident of British Columbia, Canada, a new grandmother to three grandchildren, a mixed media artist, podcaster, and wheelchair curler. Lelainia is also a busy activist, sharing her experience as a person living with NMOSD, the impact on her day-to-day life, and how she has faced the challenges of her disease.

Watch now

gMG, generalised myasthenia gravis; HPP, hypophosphatasia; NF1, neurofibromatosis type 1; NMOSD, neuromyelitis optica spectrum disorder.