(Finland)
Kalfos ry is a Finnish association that supports people with rare bone diseases. It focuses on education, advocacy, peer support, and improving care and awareness for rare bone disorders in Finland.

(Europe)
Hypophosphatasia is a France-based organisation dedicated to supporting people with hypophosphatasia. The group offers patient and family support, creates educational materials, conducts awareness campaigns, and works with healthcare professionals and researchers throughout France.

(Germany)
Hypophosphatasie Deutschland e.V. is a German patient association supporting individuals and families with hypophosphatasia. It provides information, counseling, advocacy, and facilitates patient networking and research in Germany.

(Italy)
API is the Itailan patient association for hypophosphatasia. It supports patients and familles by providing information, advocacy, and facilitating connections among the rare disease community and specialists in Italy.

(Poland)
Fundacja Hypogenek is a Polish foundation supporting people and families living with hypophosphatasia and other rare diseases. It aims to raise awareness, provide education, and offer various forms of support and advocacy throughout Poland.

(France)
Hifo-DER is a French association supporting patients and familles affected by hypophosphatasia and other rare bone diseases. The organisation provides education, advocacy, peer support, and works to improve reach and care outcomes in France.

(United Kingdom)
Metabolic Support UK is a UK-based charity supporting people of all ages living with inherited metabolic disorders. It offers education, advocacy, access to special information, family support and works to raise awareness nationally.

(Netherlands)

VKS is the Dutch action that supports adults, children and families with metabolic diseases. The group provides information, builds community, advocates for patient needs, and organises events to connect and empower the living with metabolic conditions in the Netherlands.

(Portugal)
ANDO Portugal is the national association for people with rare bone dysplasias in Portugal. It provides information, advocacy, education, networking opportunities, and support for patients and families, working to improve access to care, research, and awareness for all rare bone dysplasias.

(Spain)
Aeryoh is a Spanish association providing information, advocacy, and support for individuals and familles affected by hereditary rare osteocartilaginous diseases. It promotes research, organises awareness activities, and connects patients with specialised professionals in Spain.