This website highlights the many activities that we are conducting at this year’s congress in Helsinki, and provides easy access and links to resources to help you get the most out of our presence at the congress.

Please visit us at Booth E06 and explore our pioneering advancements in the treatment of rare neurological disorders.
Our interactive exhibits and knowledgeable team will help you explore our research, therapies, and virtual experiences.

Sign up now to be informed of our upcoming symposia, our latest educational updates, and to be alerted to our webinars, hosted by world leading rare disease experts

Sign up now to be informed of our upcoming symposia, our latest educational updates, and to be alerted to our webinars, hosted by world leading rare disease experts

The "Rare Connections" short film collection, developed by Alexion, AstraZeneca Rare Disease, captures the transformative power of storytelling and community for individuals living with rare diseases. Rare Connections in NMOSD explores the experiences of three people living with neuromyelitis optica spectrum disorder (NMOSD), and the recent addition, Rare Connections in gMG, focuses on generalized myasthenia gravis (gMG).

Both films showcase the strength and resilience of those affected by these conditions and uncover the connections between their experiences. They also shed light on the significant impact of rare diseases, including common struggles like misdiagnosis and feelings of being dismissed, misunderstood and isolated.